Monday, April 13, 2009
For the Record: NAD=ENS Has Still not Responded
NAD = ENS in Italy
AgBell = FIADDA in Italy
If you have been following this blog and what has been going on in my Italian Newborn Hearing Screening Saga, then you know that I have met with the President of the Italian Pediatric Federation and he has approved an initiative regarding the screening at a National level.
Three weeks ago, I wrote a letter asking for support from both the ENS and the FIADDA.
The FIADDA replied immediately and offered any assistance I could possibly need in carrying out this awareness campaign.
The president of the ENS has still not responded.
My purpose in creating this campaign is to identify areas of weakness in Pediatricians' knowledge of the screening and issues in deafness. Obviously, communication methodologies would be one aspect that would need to be addressed. My job is to provide unbiased resources within this campaign. Why did I even contact ENS? Because after a year and a half of blogging and listening to all of the readers' opinions, I knew that such an organization existed and how important it is to provide unbiased, objective resources for parents...starting with the pediatricians who assist them.
Ironically, in an Italian blog post, the president of ENS left this comment referring to the Italian Premier:
(translated in English)
We have written on many occasions to request a meeting as a Federation of the Historical Associations and ENS, which in Italy represents 4 million disabled, but Berlusconi until now has been the true deaf person on the national political scene considering he has never responded. And they say he is a Man of great feeling and sensitivity...
Presidente Nazionale ENS
I can understand her frustration. Just think, she is the PRESIDENT of an organization and never received a reply.
I'm just the mother of a Deaf child.