Tuesday, October 6, 2009

Walk a Kilometer in My Shoes


When two people have shared shoes, all it takes is a glance and there is a common understanding. When two people have rolled up the same sleeves, pulled at the earth with raw hands and listened to the same music on the ipod, there is synchronicity.

During the meeting with the regional representatives, I met a pediatrician, mother of twins both implanted at two years of age. We hugged at the end of the meeting. Every now and then we would catch each others' eyes and smile.

Anne, a friend I met through the Ci Circle who works miracles on the Italian forum came to visit the hotel while I was in Rome, so finally I met two of her three kids, one who has a cochlear implant. She stayed for an hour...enriching experience. She will never know how thankful I was to see her and to talk ci kids, ci surgeons and life...

I received a phone call today from the mother of a child who is having problems with his Clarion implants. There is an infection, the child has been over-medicated by doctors who are refusing to take out the implant to the point where he has a new medical condition. WTF? We talked and instead of being compassionate, I got pissed off. I cannot stand when the medical community tries to cover its ass instead of helping a child. This mother has been suffering for years with this situation that has occurred repeatedly. In the USA there are class action lawsuits underway and in Italian, on line, I found only one case reported.

I don't really want to stir something up...but I will if someone doesn't do something to help this mom.

6 comments:

Julia said...

That child should be explanted (and hopefully reimplanted) ASAP. A septic reaction could be fatal. It's rare cases like this that add fuel to the anti-CI fire. If a doctor is being irresponsible and trying to cover his butt, not only could this have devastating consequences for that family, but it could jeopardize the ability of other families to get CIs, so he's not doing the CI community any favors.

Karen Putz said...

My heart goes out to that mom and kiddo--hope it heals up quick!

Jodi Cutler Del Dottore said...

It is a truly horrifying situation. A mom feels impotent to help her child, and is placed in that condition. Having problems digesting this, but more than offer assistance and suggestions and support, what can I do?

Anonymous said...

thanks !! very helpful post!

Anonymous said...

[url=http://vegasonlines.net/casino-surveillance.html]casino lloret de mar [/url]
[url=http://vegasonlines.net/set-casino.html]aruba grand beach resort casino [/url]
[url=http://vegasonlines.net/casino-video-poker.html]estructura organica casino [/url]
[url=http://vegasonlines.net/boomtown-casino.html]president casino [/url]
[url=http://vegasonlines.net/casino-mountain.html]loteriaycasino mendoza gov ar [/url]
[url=http://vegasonlines.net/valley-view-casino.html]loteria casino pcia bs as [/url]
[url=http://vegasonlines.net/binions-casino.html]casino sur internet [/url]
[url=http://vegasonlines.net/ameristar-casino-missouri.html]casino slots [/url]
[url=http://vegasonlines.net/morongo-casino-and.html]restaurante casino aranjuez [/url]
[url=http://vegasonlines.net/cliff-castle-casino.html]casino bonus central [/url]
[url=http://vegasonlines.net/charles-ameristar-casino.html]tropicanac casino atlantic city [/url]
[url=http://vegasonlines.net/online-casino-machines.html]harrahs casino san diego [/url]
[url=http://vegasonlines.net/california-casino-san.html]home casino [/url]
[url=http://vegasonlines.net/battle-creek-casino.html]casino playboy tv [/url]
[url=http://vegasonlines.net/casino-finances.html]casino bonus [/url]
vegas map casino
[b]casino espana pagina internet[/b]
casino betting tool
estrategia del casino
[b]internet casino gambling online[/b]
promocion casino portal internet
[u]hooters casino vegas[/u]
vegas tropicana resort and casino
casino descarga linea
[b]casino strip poker localia[/b]
willemstad marriott beach resort emerald casino
truco ruleta casino

Anonymous said...

[url=http://seghan.ru/go.php?sid=35][img]http://s002.radikal.ru/i200/1001/f0/0ddd2280d906.jpg[/img][/url]












[url=http://oicinoc.server3.eu/sitemap.html]buy cigarettes from a [/url]
buy cigarette tobacco buy cheap cigarettes by check buy cigarettes from canada
[url=http://coltahs.modellbau.in/]buy native cigarettes [/url]
order candy cigarettes treasurer cigarettes buy online buy cigarettes by the pack
[url=http://yutolfi.3d.lc/sitemap.html]bulk order cigarettes [/url]
to buy tax free cigarettes buy misty cigarettes free shipping laws about buying cigarettes
[url=http://hkigmet.bei-der-arbeit.de/sitemap.html]buy menthol cigarettes online [/url]
order cigarettes online cheap buy american sprit cigarettes buy vogue cigarettes online
[url=http://qrooddn.evaluiert.de/]buy ultra buy premier cigarettes [/url]
how to buy cigarettes buy glamour cigarettes buy cigarettes online free shipping cheap
[url=http://lhmxaha.welt.tl/]buy all natural cigarettes online [/url]
buy us cigarettes jacks cigarettes order where to buy cheap cigaretts online
[url=http://hkigmet.bei-der-arbeit.de/]order cigarette lighters wholesale [/url]
legalities of buying cigarettes online thailand cigarettes buy buy cheap cigarettes online uk
[url=http://lhmxaha.welt.tl/]buy cigarette wholesale [/url]
buying cigarette buy wholesale dse901 e cigarettes buy cheap cigarettes online uk
[url=http://pbfeeba.cs-clan.org/]buy cigarettes online from kentucky [/url]
where to buy cigarette paper buy salem cigarettes online buy electronic cigarette in
[url=http://zncqjyl.personifiziert.de/]buy cheap cigarettes from [/url]
buying cigarettes online taxes legal age to buy cigarettes buying electric cigarette