Saturday, June 12, 2010

Globally Deaf- Same Road, Different Country

The list of countries present at the NHS 2010:


This is my poster of the Italian-GPOD collaboration, unfortunately I lost the picture of the GPOD position paper poster:

With Special Thanks to:
ITALY
Prof. Ferdinando Grandori, Director of the CNR Istituto di Ingegneria Biomedica (National Research Council – Institute of Biomedical Engineering)
Dr. Giuseppe Mele, FIMP President
Dr. Giovanni Lenzi, Chair Rete Audiologica FIMP
Prof. Stefano Berrettini, Direttore: S.O.D. Otologia-Impianti Cocleari, Azienda Ospedaliero Universitaria Pisana
Prof. Alessandro Martini, Direttore: Otorinolaringoiatria con indirizzo Otochirurgico dell’Azienda Ospedaliera di Padova
COCHLEAR ITALIA
GN RESOUND
ARSI-ONLUS Associazione per la Ricerca sulla Sordità Infantile

USA
Karl White, PhD, Director, National Center for Hearing Assessment and Management (NCHAM)
Mary Pat Moeller, PhD, Director Center for Childhood Deafness
Lenore Shisler, MS, NCHAM, Utah State University
Christine Yoshinaga-Itano, PhD, University of Colorado/Boulder
Cheryl DeConde Johnson, PhD, University of Colorado/Boulder
Leeanne Seaver, MA, Hands & Voices
Janet DesGeorges, Hands & Voices

UK
Pauline Walker, Deputy Director Families NDCS
Gwen Carr, PhD

AUSTRALIA
Ann Porter, Founder, Aussie Deaf Kids
Roz Keenan, National Parent Services Coord., Deaf Children Australia
Naomi Higgs, Pediatric Cochlear Implant Circle

(The Empress)This picture was taken just before my meeting with the CDC to discuss possible options in global parental support. Unfortunately, the scope of the meeting shifted to electronic health records, which is not on my agenda. I hope that we can find a way to meet our goals together. In any case, I met some incredible people and it was an experience.



Well, I arrived in Cernobbio, and I'm thinking how am I ever going to find the women in my life...and then suddenly, there they were-running towards me!


One of the greatest moments was when the six of us- GPOD women- had dinner together and talked about our Deaf children. Doesn't matter which country you live in, life and Deafness go hand in hand globally. Each of our kids is at a different point in life, and each story was an emotional moment. Extremely touching- siblings. Sofia used to put Barbie pink bluetooth in her ears to be like her brother. Other siblings couldn't stand each other because of jealousy- how ironic for a hearing child to be jealous of a deaf sibling...but our kids with disability condition our lives in such a way that we realize only years ahead. Being able to discuss this aspect with another parent, makes you more aware of how to parent more effectively and inclusively.
One word- LIMONCELLO.
I HIGHLY RECOMMEND IT FOR TEARY, DEEP CONVERSATIONS WITH SOUL SISTERS.


In sessions filled with leading researchers, Audiologists, Cochlear Implant Surgeons, ENTs, Pediatricians, Directors of NHS programs worldwide...

YOU, THE PARENTS, WERE PRESENT, TOO.
WE WERE NOT SHY.
*SMILE*
MORE COMING SOON....

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