This was a recent post to an Italian support group:
You may not believe me but I have never found support in any aspect of our situation with Marco. Not one person has stepped forward to assist us, not even the Federation dedicated to helping families with Deaf children- and I'm afraid to mention names. I will say that I received a response from them saying that they can only help families of children who are cochlear implant recipients. I even wrote a letter of protest to the National Federation Headquarters.
The child psychiatrist? How can I get in touch with him? Privately? Jodi, Marco's doctors initially told me that they were in no way in favor of requesting a support teacher in the classroom for him. What can I say??? Anyway, I know that it is difficult for you to understand, but I HAVE BEEN ABANDONED BY THE SYSTEM WITH NO TYPE OF SUPPORT WHATSOEVER!!!
At this point, who do I fight?? I would need to go after everyone for the way in which this situation has been handled. In all of these years, no one realized my son was Deaf...from the ENT to the Pediatrician- what else can I say???
Unfortunately, this is not an uncommon situation.
Please take ten minutes to take the GPOD survey, so that we can work to improve the system and ensure that parents receive support globally...
http://www.surveymonkey.com/s.aspx?sm=5eHe_2bpFgBxwGqaf_2fisWQog_3d_3d
Calling all Bloggers: Please post the survey on your blogs, as well. We are a powerful bunch when we work together...Thank you.
