tag:blogger.com,1999:blog-854575870070704513.post4063228987206830311..comments2023-11-05T04:58:54.173-05:00Comments on An American Mom in Tuscany: Jordan's Cochlear Implant Story: Response to Mishka and MyselfAnonymoushttp://www.blogger.com/profile/11437710259566671762noreply@blogger.comBlogger19125tag:blogger.com,1999:blog-854575870070704513.post-63739879763705924072010-03-21T04:54:02.618-04:002010-03-21T04:54:02.618-04:00Do You interesting how to [b]Buy Viagra per pill[/...Do You interesting how to [b]Buy Viagra per pill[/b]? 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I think it would be irresponsible for me not to share my experience. My child unfortunately has had two device failures. The first device was implanted in 2004 and then a second one in 2006. Both failed, both were recalled, both were from supplier B. The 2nd implant failed in 2008. I can't stop wondering why they gave my child an implant from supplier B a second time when they had these prior issues and recall. I'm trying to keep faith in the company that they are improving and this won't happen again. <BR/><BR/>It is not my intention to discourage anyone from a particular company. I know many people who have a CI from AB and they have not had the issues we have had, they have had great success with their implants and I am very happy for them. I am praying that our days of failure are over and we will finally share in the success that they have had. But I will never be able to not worry about failure again, and every time I hear my child scream I will feel that fear come over me wondering if the device failed again. <BR/><BR/>Through all of this, I still think the AB CI is the best technology out there and it is such a shame that they selected such a poor supplier and they made some very bad errors in judgment. You are right that this should not have happened to any of us but more importantly, this should not happen in the future!!! I hope the FDA fine will go a long way in assuring the company does not make these same choices again.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-854575870070704513.post-30043401657675264182008-04-05T01:26:00.000-04:002008-04-05T01:26:00.000-04:00just found your blog. . .thank you so much for you...just found your blog. . .thank you so much for your wisdom and thoughts and honesty. My 8 year old son is in the process of getting a ci, and Jordan's (and your) story has so many parallels to our own, down to the 5 year old drama queen. although mine is nicknamed "Miss Diva." :) thank you again.kmswhttps://www.blogger.com/profile/16256666129895069841noreply@blogger.comtag:blogger.com,1999:blog-854575870070704513.post-60197907596979263112008-03-31T17:15:00.000-04:002008-03-31T17:15:00.000-04:00Hey Kim,I just wanted to tell you that your commen...Hey Kim,<BR/>I just wanted to tell you that your comment on the post I wrote about my grandfather really touched me. I believe that when the people we love pass, they are still with us, and your story about your grandma was beautiful. Actually, it's been a really strange period for me and I've been having some bizarre dreams myself. Thanks for posting that...I'm not surprised such a thing happened to you given the sensitive person you are...hugs, JodiAnonymoushttps://www.blogger.com/profile/11437710259566671762noreply@blogger.comtag:blogger.com,1999:blog-854575870070704513.post-88500692324007072622008-03-31T17:01:00.000-04:002008-03-31T17:01:00.000-04:00It is old news. Even I heard about it. One of my...It is old news. Even I heard about it. One of my SWC friends wears Advanced Bionics. :-)Kimhttps://www.blogger.com/profile/13093639101711800065noreply@blogger.comtag:blogger.com,1999:blog-854575870070704513.post-77890718868761779032008-03-31T16:58:00.000-04:002008-03-31T16:58:00.000-04:00Elizabeth,Taking a break from packing to let off s...Elizabeth,<BR/>Taking a break from packing to let off some steam, I become a freaking lunatic when I have to prepare to travel for 20 hours. Jordan was like, "Tomorrow morning when it's time to leave, don't grab me and rush me out because I have some things I have to take." Even he knows I'm crazy.<BR/>Anyway, I understand the point of what you were saying. I just hope that the attention drawn to mechanical malfunctions forces the companies to pay closer attention to creating the best possible product. We, the parents, are informed as to the risks, and we make the choice anyway. You should read the discussions going on right now on the Circle, you would be blown away by the power of the parents to not only be diplomatic but informative. I am very lucky to have found such a support group, as I am fortunate to have found deafread.com. <BR/>Had I not been exposed to the preoccupations of the Deaf community, I would not be as sensitive to such issues, nor would I have ever posted about the fining of AB. Awareness is not only limited to the support groups. Perhaps when the Deaf community realizes that no one is trying to glorify cis, they will begin to see that parents are not trying to "fix" their kids, they're just trying to do the best they can to ensure that their kids have as many opportunities as possible, (with absolutely no intention of insulting or belittling the ASL Deaf experience-it's just a parental prerogative) and yes, we suffer throughout the entire process. We suffer, yet we are convinced that we are doing the best we can for our kids. <BR/>Thanks again for your invitation and I look forward to meeting you this summer. I am sure we will not be at a loss for conversation...hugs, Jodi (beyond stressed:))Anonymoushttps://www.blogger.com/profile/11437710259566671762noreply@blogger.comtag:blogger.com,1999:blog-854575870070704513.post-2503718848126975232008-03-31T15:55:00.000-04:002008-03-31T15:55:00.000-04:00*prerogative* Excuse me for many errors. I am usi...*prerogative* Excuse me for many errors. I am using my hubby's laptop temporarily until I get my new one. <BR/><BR/>Jodi, many Deaf people do understand that the parents want the best for their deaf kids. That's not the issue.mishkazenahttps://www.blogger.com/profile/07714824721166601510noreply@blogger.comtag:blogger.com,1999:blog-854575870070704513.post-72778947708922541082008-03-31T14:54:00.000-04:002008-03-31T14:54:00.000-04:00Now we're talking...Now we're talking...Anonymoushttps://www.blogger.com/profile/11437710259566671762noreply@blogger.comtag:blogger.com,1999:blog-854575870070704513.post-91474685706146349362008-03-31T14:42:00.000-04:002008-03-31T14:42:00.000-04:00K.L. I am aware that the parents are more forthcom...K.L. <BR/><BR/>I am aware that the parents are more forthcoming with the other parents in the ci listservs. The downplaying I observed in the blogs yesterday disturbs me, but I am seeing more people acknowledging the seriousness today, which is reassuring. <BR/><BR/>I am truly sorry for the people with AB implants dealing with this recall, especially with the parents of pediatric c.i. users. There is no doubt in my mind that the parents only want the best for their kids. Having their kids undergo a surgical procedure is a scary experience for the parents.mishkazenahttps://www.blogger.com/profile/07714824721166601510noreply@blogger.comtag:blogger.com,1999:blog-854575870070704513.post-4813813957580485152008-03-31T14:03:00.000-04:002008-03-31T14:03:00.000-04:00MishkaZena,Trust me, we didn't downplay it. It wa...MishkaZena,<BR/>Trust me, we didn't downplay it. It was and is a very disturbing incident, and everyone on the circle felt for those who had to go through the failures. All I was saying, was that the CI Circle did an excellent job of keeping each other informed of what was going on.<BR/><BR/>Between the positioner situation, and the supplier B situation, AB had a lot of QC questions to answer for.K.L.https://www.blogger.com/profile/15901738024056889823noreply@blogger.comtag:blogger.com,1999:blog-854575870070704513.post-82026149912839210122008-03-31T13:06:00.000-04:002008-03-31T13:06:00.000-04:00What did the Cochlear Americas, Inc. react?I just ...What did the Cochlear Americas, Inc. react?<BR/><BR/>I just am wondering.....They will have to be solicitous and scrutinize with their products.<BR/><BR/>White GhostAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-854575870070704513.post-59765465851192633722008-03-31T12:28:00.000-04:002008-03-31T12:28:00.000-04:00The voluntary recalls shouldn't have happened in t...The voluntary recalls shouldn't have happened in the first place. A company of highest integrity would have made sure the rigorous testings of its products to ensure the highest quality of standards are conducted before the products were released to the public. <BR/><BR/>It didn't. Hence the whopping fine<BR/><BR/>That is the significance of this case. <BR/><BR/>It is disturbing to see many people downplaying the significance of the voluntary recalls of devices already implanted in people's bodies and the fine FDA wants to levy. A 2.2 million dollars fine isn't nothing to sneeze at. <BR/><BR/>If I have a beloved family member, especially a child, that I'll be sending to an operating room for whatever reason, I will make damn sure that the company of the surgical device has the highest safety records. I certainly will not pick a surgical product for which the company had been fined for failing to undergone its mandatory quality control testing. I want the very best for my loved one. If other people don't mind this big minus in the company's history including a steep fine from a regulating agency for producing out inferior surgicial products, that is their pregorative. I don't care if it happened last year or five years ago. Lives of patients were endangered needlessly, with implant failures, second surgeries and possible complications inherent with any surgery. This should never have happened.mishkazenahttps://www.blogger.com/profile/07714824721166601510noreply@blogger.comtag:blogger.com,1999:blog-854575870070704513.post-85091855913701875882008-03-31T12:25:00.000-04:002008-03-31T12:25:00.000-04:00If you type in "Advanced Bionics recall" in the se...If you type in "Advanced Bionics recall" in the search in CICircle, and after the results come up, click on "last" and then "previous." You'll find all the discussions that CICircle had in 2004 about the AB recall.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-854575870070704513.post-79055655141999451722008-03-31T12:05:00.000-04:002008-03-31T12:05:00.000-04:00Jodi,I don't think you were part of the CI Circle ...Jodi,<BR/>I don't think you were part of the CI Circle when this issue first came up, but it was a major topic of conversation on the circle at that time. After the voluntary recall, AB came off the market for a short time to be sure that all of the defective product was fully recalled. They got FDA approval to continue marketing with the non-defective manufacturer. It was scary and disheartening at the time, but we were all well informed at the time.K.L.https://www.blogger.com/profile/15901738024056889823noreply@blogger.comtag:blogger.com,1999:blog-854575870070704513.post-2037905967384789302008-03-31T10:59:00.000-04:002008-03-31T10:59:00.000-04:00Did you know that FDA recently issued cantaloupe r...Did you know that FDA recently issued cantaloupe recall from Hondura due to salmonella outbreak. sigh....remember to buy produce when in season and locally, if possible. Heck, just grow your own on your patio or in your yard!! <BR/><BR/>I just had to post this... :*)Dividedhttps://www.blogger.com/profile/15844342156327815468noreply@blogger.comtag:blogger.com,1999:blog-854575870070704513.post-18157862438294291462008-03-31T09:05:00.000-04:002008-03-31T09:05:00.000-04:00This is so typical of our government...happens whe...This is so typical of our government...happens whenever companies come out with new medication, food labeling, products, autos, etc. We have got to arm ourselves with awareness and knowledge. How?? READ, RESEARCH, READ, ASK QUESTIONS as much as possible. Whether old or new news...we need to know about these things when deciding whether to choose products we put in or on our bodies!! <BR/><BR/>Thanks Jodi, for bringing up this issue to the forefront for those considering implants. Even if the company recalled and rectified their product, we ought to know. <BR/>Don't be gullible and believe everything that FDA, FAA, EPA...et al says, take it with a grain of salt. <BR/><BR/>Have a great trip Jodi & Jordan!!Dividedhttps://www.blogger.com/profile/15844342156327815468noreply@blogger.comtag:blogger.com,1999:blog-854575870070704513.post-10511016126470441822008-03-31T08:36:00.000-04:002008-03-31T08:36:00.000-04:00Interesting to read the blogs and comments.So it i...Interesting to read the blogs and comments.<BR/><BR/>So it is an old news? I know that there are always a few mechanical errors which force the companies to undergo the recall procedures. My van was recalled to repair one minor problem several years ago and my Dell laptop's battery was recalled and I sent it and got the new battery( the old battery heated up too quickly, increasing the chance of fires.)<BR/><BR/>Unfortunately, when the models always have mechanical faults and through trials of errors, the models get better... sometimes an unfair advantage over the people who have older models :-(<BR/><BR/>There are many factors. However, I did not pay much attention to the news about CI's in the early and middle 2000's since I was busy being a mom of two young kids.Karen Mayeshttps://www.blogger.com/profile/08489062601774194183noreply@blogger.comtag:blogger.com,1999:blog-854575870070704513.post-85673602896400096452008-03-31T07:59:00.000-04:002008-03-31T07:59:00.000-04:00:) :):) :)Anonymoushttps://www.blogger.com/profile/11437710259566671762noreply@blogger.comtag:blogger.com,1999:blog-854575870070704513.post-81404990275247260902008-03-31T07:35:00.000-04:002008-03-31T07:35:00.000-04:00;-);-)Anonymousnoreply@blogger.com